CME-accredited live webinar

CME-accredited live webinar

Thursday, 24 June, 2021

12:00-13:30 EDT | 18:00-19:30 CEST

This 90-minute case-based webinar will cover important topics such as:

  • New presentation of FOP
  • Flare-up management
  • Common complications of FOP
  • Considerations for vaccination / immunizations

Faculty

Robert J. Pignolo
Robert J. Pignolo
Mayo Clinic College of Medicine, Rochester, MN, USA
Bio
Geneviève Baujat
Geneviève Baujat
Imagine Institute of Necker-Enfants Malades Hospital, Paris, France
Bio
Carmen L. De Cunto
Carmen L. De Cunto
Hospital Italiano de Buenos Aires, Argentina
Bio
Richard Keen
Richard Keen
Royal National Orthopaedic Hospital, London, UK
Bio
Chris Scott
Chris Scott
Red Cross War Memorial Children’s Hospital, University of Cape Town, South Africa
Bio
Accredited program

Event registration

Register for your place by completing the form below:

This program is made possible thanks to an independent educational grant from Ipsen

Robert J. Pignolo

Robert J. Pignolo

Professor of Geriatric Medicine, Chair of Geriatric Medicine and Gerontology, Mayo Clinic College of Medicine, Rochester, MN, USA

Dr. Robert J. Pignolo, MD, PhD is the Robert and Arlene Kogod Professor of Geriatric Medicine and Chair of Geriatric Medicine and Gerontology at the Mayo Clinic College of Medicine.

He has worked on basic science, translational, and clinical aspects of bone diseases, including FOP and non-hereditary forms of heterotopic ossification (HO), for over 20 years – first at the University of Pennsylvania in Center for Research on FOP & Related Disorders in Philadelphia, and now at the Mayo Clinic in Rochester, Minnesota.

Major research areas related to FOP include rare bone disorders, natural history of FOP, drug discovery, non-hereditary HO, and repurposing of drugs for the treatment of FOP and similar conditions.

He is currently the principal investigator on all interventional trials for FOP at the Mayo Clinic. He is actively involved in the FOP community worldwide and is currently president of the International Clinic Council on FOP, established in 2017 to help consolidate a global voice for the best practices for clinical care and clinical research for people who suffer from FOP. Outside of FOP-related activities, his research focuses on basic, translational, and clinical aspects of conditions of aging and musculoskeletal disorders, with a focus on cellular senescence and accelerated tissue aging and disease.

He serves on the editorial boards for Aging Cell, Bone, and Mayo Clinic Proceedings.

Disclosures
Principal investigator on clinical trials and consultant for Clementia Pharmaceuticals/Ipsen and Regeneron Pharmaceutical.

Geneviève Baujat

Geneviève Baujat

Clinical Geneticist Consultant, Imagine Institute of Necker-Enfants Malades Hospital, Paris, France

Geneviève Baujat, pediatrician by training, is Clinical Geneticist Consultant in the Centre of Reference for Skeletal Dysplasia, at the Imagine Institute of Necker-Enfants Malades Hospital in Paris, France. She is also a member of the European Reference Network on Rare Bone Disorders and the International Clinical Council on Fibrodysplasia Ossificans Progressive (FOP). She has an active interest for skeletal dysplasia diagnosis (from antenatal period to adulthood) and pediatric management. She participates in several research projects through the Centre of Reference, including the development of databases and registries for better known epidemiology and natural history of skeletal conditions, and also takes part in clinical trials for emergent therapies, including FOP.

Disclosures
Grants, research and supports for advisory boards and conferences: Clementia Pharmaceuticals/Ipsen, Alexion, BioMarin, Inventiva, Genzyme and Regeneron.

Carmen L. De Cunto

Carmen L. De Cunto

Head Pediatric Rheumatolgy Section, Hospital Italiano de Buenos Aires, Argentina

Dr. de Cunto is Associate Professor of Pediatrics at Escuela de Medicina del Instituto Universitario at Hospital Italiano in Buenos Aires, Argentina. Here, she also works as a Pediatric Rheumatologist, and is Head of Pediatric Rheumatology Section in the Department of Pediatrics. Dr. de Cunto is the Coordinator of the program “Transition from Pediatrics to adult medicine” at the same hospital. For the last 20 years she has been taking care of children and young adults with fibrodysplasia ossificans progressive (FOP). Currently, she also works as a Consultant at Fundación FOP Argentina, and as a Referral Consultant for patients with FOP around Latin-America. Since 2016 she is a member of the FOP International Clinical Council, where in 2019 she was named Co-Chair for the Clinical Trials Committee and since 2020 is also chair for the Medical Advisory Board IFOPA Registry.

Disclosures
Grant/research support, honoraria or consulation fees: Ipsen, PI in FOP protocols.

Richard Keen

Richard Keen

Consultant in Metabolic Bone Disease, Royal National Orthopaedic Hospital, London, UK

Professor Richard Keen is a Consultant in Metabolic Bone Disease, working at the Royal National Orthopaedic Hospital in the UK. He trained in rheumatology, but for the last 20 years has specialized in the management of osteoporosis and rare metabolic bone diseases. Professor Keen leads a clinical research team, and is the Principal Investigator for trials examining novel treatments for patients with fibrodysplasia ossificans progressive (FOP). He is also a member of the International Clinical Council on FOP.

Disclosures
• Advisory Boards: Ipsen, Regeneron
• Speaker Fees: Ipsen
• Research Support: Ipsen, Regenerson

Chris Scott

Chris Scott

Head of Pediatric Rheumatology at Red Cross War Memorial, Associate Professor at University of Cape Town, South Africa

Dr. Scott is Associate Professor and Head of Pediatric Rheumatology at Red Cross War Memorial Children’s Hospital and the University of Cape Town. His research and educational focus is on the care of patients with rare and rheumatic diseases in Africa and other less resourced communities. Dr. Scott has a special interest in access to care, pediatric systemic lupus erythematosus, juvenile idiopathic arthritis and fibrodysplasia ossificans progressive (FOP). He is a former Chairman of the South African Arthritis Foundation and the Co-chair of the Global Task Force for Musculoskeletal Health. He also serves on the Steering Committee of the Paediatric Society of the African League of Associations for Rheumatology, the International Clinical Council on FOP, and the International Presidents Council for IFOPA.

Disclosures
No disclosures to declare